Silvertongue
Headmaster/Headmistress
I've got Slytherin Pride
Posts: 1,595
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Post by Silvertongue on Jul 8, 2012 16:51:17 GMT -5
Neither have I. It's just unnecessary cruelty and callousness.
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Post by physicssquid on Jul 8, 2012 16:51:37 GMT -5
I knew someone who had scoliosis, and she's still got two metal rods in her back. I haven't seen her in years, because she was two years below me in junior school, and she's pretty famous.
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Post by brokenquill92 on Jul 8, 2012 16:57:51 GMT -5
Neither have I. It's just unnecessary cruelty and callousness. But people do it whats weird is the same people who used to bully got on my case about telling off this girl just because she has down syndrome and I was like I'm not going to treat anyone different just because they have a disability that includes people I dislike I mean that girl was an utter bitch and not to mention she tried to use her disability to get out of working people like that piss me off |
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Post by readingwizard4 on Jul 8, 2012 17:03:59 GMT -5
I have hydrocephalus myself. I have a shunt that helps drain the fluid that gets built up in my brain. The part of my brain effected was motor control. I can't walk long distances without tiring. It is noticeable if you see me in public. I've been grateful to have friends that don't care about it. It sucked not being able to play sports in high school but I was at a lot of the games cheering friends on. Fortunately I'm a part of several adaptive sports groups. I've had a couple of surgeries to help my legs so I can walk further than when I was younger. If I write or type too much my hands also tire out. When my shunt breaks or comes undone it sucks royally. Migranes and throwing up.
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Post by brokenquill92 on Jul 8, 2012 17:07:55 GMT -5
I have hydrocephalus myself. I have a shunt that helps drain the fluid that gets built up in my brain. The part of my brain effected was motor control. I can't walk long distances without tiring. It is noticeable if you see me in public. I've been grateful to have friends that don't care about it. It sucked not being able to play sports in high school but I was at a lot of the games cheering friends on. Fortunately I'm a part of several adaptive sports groups. I've had a couple of surgeries to help my legs so I can walk further than when I was younger. If I write or type too much my hands also tire out. When my shunt breaks or comes undone it sucks royally. Migranes and throwing up. Me too thank good I haven't needed a replacement in a few years hi a vp shunt and my BFF has a va and vp I didn't get a va because my heart couldn't handle it |
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Post by Holly on Jul 8, 2012 17:13:49 GMT -5
Bullying people because they have a disibility... it's so wrong. Here and in real life.
We all enjoy the same fandom. Nothing else matters.
More importantly, we're all human.
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Post by Point Given on Jul 8, 2012 17:17:18 GMT -5
I haven't been checking the threads here, but are there issues going on that I should know about regarding bullying or trolling? If it's just disagreements I'm not going to be all anal about it as long as it's civil but it's worse than you all can come to me.
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Post by brokenquill92 on Jul 8, 2012 17:20:35 GMT -5
I haven't been checking the threads here, but are there issues going on that I should know about regarding bullying or trolling? If it's just disagreements I'm not going to be all anal about it as long as it's civil but it's worse than you all can come to me. No not at all we're just having discussions on how sucky real world people can get |
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Post by kumainpink on Jul 8, 2012 17:22:41 GMT -5
Yep. So far, everything is good here. Thanks for your concern, Point!
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Post by Point Given on Jul 8, 2012 17:25:56 GMT -5
Ah okay, because in Miss Wing's first post she referenced some disagreements that were going on in other threads.
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Post by kumainpink on Jul 8, 2012 17:32:09 GMT -5
Thanks for your concern, Point! I'm sure that if there is a real problem, someone will tell you about it. I can't think of one person on here whose been too rude, though.
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Post by brokenquill92 on Jul 8, 2012 17:34:00 GMT -5
Nope not a one
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Post by readingwizard4 on Jul 8, 2012 17:36:54 GMT -5
I have hydrocephalus myself. I have a shunt that helps drain the fluid that gets built up in my brain. The part of my brain effected was motor control. I can't walk long distances without tiring. It is noticeable if you see me in public. I've been grateful to have friends that don't care about it. It sucked not being able to play sports in high school but I was at a lot of the games cheering friends on. Fortunately I'm a part of several adaptive sports groups. I've had a couple of surgeries to help my legs so I can walk further than when I was younger. If I write or type too much my hands also tire out. When my shunt breaks or comes undone it sucks royally. Migranes and throwing up. Me too thank good I haven't needed a replacement in a few years hi a vp shunt and my BFF has a va and vp I didn't get a va because my heart couldn't handle it I had a couple of revisions when I was a couple of years old. My last revision was in 1st grade and I'm starting Junior Year of college this fall. I've only had once close call since, in 8th grade. I have a vp shunt as well. Forgot to mention that in my first post. What's the difference between va and vp shunt? I looked it up a couple of years but I can't remember. |
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Post by mountaingirl777 on Jul 8, 2012 17:41:18 GMT -5
I have Psychogenic Non-Epileptic Seizures (caused by stress and other stuff), Chiari Malformation type 1, and Brain Fog caused by Lupus when I was younger (I'm in remission since age 14). Brain Fog consists of cognitive disfunction, difficulty finding words, confusion, impaired recall, depression and anxiety which I have most of them and which is why some of my posts are very choppy because I have trouble connecting my thoughts.
My seizures (episodes) aren't the "fall to the ground, shaking all over" seizures. I will merely just stare at a certain area and won't remember what happened during that time. Sometimes my arms or legs move, but most of the time my seizures are gentle. Sometimes I have long ones and sometimes will come in and out of them, able to comprehend what is happening but won't be able to stop it. I have auras before them, most of the time it is a headache but I will sometimes have a feeling that something that is going to happen (I get the "butterfly effect" when I have this aura).
I also have arthritis and have had it since I was little. It is from the Lupus.
I get migrains a lot because of the chiari malformation.
If you have any questions about any of what I wrote, just ask.
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Post by brokenquill92 on Jul 8, 2012 17:43:14 GMT -5
Me too thank good I haven't needed a replacement in a few years hi a vp shunt and my BFF has a va and vp I didn't get a va because my heart couldn't handle it I had a couple of revisions when I was a couple of years old. My last revision was in 1st grade and I'm starting Junior Year of college this fall. I've only had once close call since, in 8th grade. I have a vp shunt as well. Forgot to mention that in my first post. What's the difference between va and vp shunt? I looked it up a couple of years but I can't remember. My first was at thirteen and second at fifteen The vp drains into your stomach and the va filters to your heart vp you pee out the excess va disapates into your bloodstream I'm sad I had to take off of college do I can learn Braille and get some more adaptive technology training oooo that reminds me I need to go oil my cane |
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Post by Miss Wings on Jul 8, 2012 17:54:06 GMT -5
I have Psychogenic Non-Epileptic Seizures (caused by stress and other stuff), Chiari Malformation type 1, and Brain Fog caused by Lupus when I was younger (I'm in remission since age 14). Brain Fog consists of cognitive disfunction, difficulty finding words, confusion, impaired recall, depression and anxiety which I have most of them and which is why some of my posts are very choppy because I have trouble connecting my thoughts. My seizures (episodes) aren't the "fall to the ground, shaking all over" seizures. I will merely just stare at a certain area and won't remember what happened during that time. Sometimes my arms or legs move, but most of the time my seizures are gentle. Sometimes I have long ones and sometimes will come in and out of them, able to comprehend what is happening but won't be able to stop it. I have auras before them, most of the time it is a headache but I will sometimes have a feeling that something that is going to happen (I get the "butterfly effect" when I have this aura). I also have arthritis and have had it since I was little. It is from the Lupus. I get migrains a lot because of the chiari malformation. If you have any questions about any of what I wrote, just ask. I feel for you my fellow. Epil-pal.. Mine aren't the full on seizures either. I was January that I went for a ECG scan and May that I got the results. I was suffering from the same as you. I would start into space and my hands would shake. We'd told the Dr for over 2 years that it was happening but he wouldn't do anything about it. That's why I gave him the nickname Dr DoFuckAll... |
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Post by brokenquill92 on Jul 8, 2012 18:00:43 GMT -5
I have Psychogenic Non-Epileptic Seizures (caused by stress and other stuff), Chiari Malformation type 1, and Brain Fog caused by Lupus when I was younger (I'm in remission since age 14). Brain Fog consists of cognitive disfunction, difficulty finding words, confusion, impaired recall, depression and anxiety which I have most of them and which is why some of my posts are very choppy because I have trouble connecting my thoughts. My seizures (episodes) aren't the "fall to the ground, shaking all over" seizures. I will merely just stare at a certain area and won't remember what happened during that time. Sometimes my arms or legs move, but most of the time my seizures are gentle. Sometimes I have long ones and sometimes will come in and out of them, able to comprehend what is happening but won't be able to stop it. I have auras before them, most of the time it is a headache but I will sometimes have a feeling that something that is going to happen (I get the "butterfly effect" when I have this aura). I also have arthritis and have had it since I was little. It is from the Lupus. I get migrains a lot because of the chiari malformation. If you have any questions about any of what I wrote, just ask. Have ever noticed the only seizures ever shown on tv are the fall out of your chair and shake ones the I get don't go that way I just feel dizzy and my hand tremble a bit |
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Post by mountaingirl777 on Jul 8, 2012 18:07:27 GMT -5
I have Psychogenic Non-Epileptic Seizures (caused by stress and other stuff), Chiari Malformation type 1, and Brain Fog caused by Lupus when I was younger (I'm in remission since age 14). Brain Fog consists of cognitive disfunction, difficulty finding words, confusion, impaired recall, depression and anxiety which I have most of them and which is why some of my posts are very choppy because I have trouble connecting my thoughts. My seizures (episodes) aren't the "fall to the ground, shaking all over" seizures. I will merely just stare at a certain area and won't remember what happened during that time. Sometimes my arms or legs move, but most of the time my seizures are gentle. Sometimes I have long ones and sometimes will come in and out of them, able to comprehend what is happening but won't be able to stop it. I have auras before them, most of the time it is a headache but I will sometimes have a feeling that something that is going to happen (I get the "butterfly effect" when I have this aura). I also have arthritis and have had it since I was little. It is from the Lupus. I get migrains a lot because of the chiari malformation. If you have any questions about any of what I wrote, just ask. I feel for you my fellow. Epil-pal.. Mine aren't the full on seizures either. I was January that I went for a ECG scan and May that I got the results. I was suffering from the same as you. I would start into space and my hands would shake. We'd told the Dr for over 2 years that it was happening but he wouldn't do anything about it. That's why I gave him the nickname Dr DoFuckAll... yeah, they just started to get worse about a year ago (a very stressful year). I started to notice that sometimes I would feel weird and then I would remember certain things. I also started to remember back when I was little and I would "wake up" to my mom yelling at me for daydreaming in school (I was homeschooled k-12 and I was taught by my parents, not a tutor). I would tell her that I wasn't daydreaming and that I couldn't hear her when she called me 5 times in a row and that I didn't know what she said, I couldn't remember. It all came together when I started having these seizures and we think that I have been having them for years. They did a EEG when I was little, but they couldn't find anything and this time they did an VEEG for 5 days and caught a few, but nothing happened with my brain with those so they put it as psychogenic. the worst thing about the whole "being diagnosed" was the spinal tap. My first neurologist tried to do it in the office, and I know that it is common and that is it a simple procedure, BUT....when he started, he couldn't figure out whether to have me lay down or sit. He also had trouble finding where to insert the needle. When he finally started, it really hurt. He pulled out and tried again, this time a sharp pain went from my right shoulder all the way to my foot! I told him to stop and he did (thankfully). I didn't go back to him again (as he also gave me a mixture of meds that gave me a weird side effect where I couldn't stop moving on one side). I changed doctors and this one sent me to floroscopy. With Floroscopy the whole spinal tap was a breeze. didn't hurt and didn't have any problems. |
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Post by Miss Wings on Jul 8, 2012 18:08:51 GMT -5
I hate the steriotypyicsl thing. I do get dizzy spells but I have hyperthroidism as well. Definitely leaving now.Point given. Nothings wrong I was talking on FB as well and got slightly confused. Always happens. Sorry
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Post by readingwizard4 on Jul 8, 2012 18:10:06 GMT -5
I had a couple of revisions when I was a couple of years old. My last revision was in 1st grade and I'm starting Junior Year of college this fall. I've only had once close call since, in 8th grade. I have a vp shunt as well. Forgot to mention that in my first post. What's the difference between va and vp shunt? I looked it up a couple of years but I can't remember. My first was at thirteen and second at fifteen The vp drains into your stomach and the va filters to your heart vp you pee out the excess va disapates into your bloodstream I'm sad I had to take off of college do I can learn Braille and get some more adaptive technology training oooo that reminds me I need to go oil my cane I can't even imagine that. It's probably not as bad as I'm imagining I hope. That sucks you have to take off from college. At least there is good adaptive technology out there so when you do go back you can succeed. |
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Post by mountaingirl777 on Jul 8, 2012 18:10:24 GMT -5
I have Psychogenic Non-Epileptic Seizures (caused by stress and other stuff), Chiari Malformation type 1, and Brain Fog caused by Lupus when I was younger (I'm in remission since age 14). Brain Fog consists of cognitive disfunction, difficulty finding words, confusion, impaired recall, depression and anxiety which I have most of them and which is why some of my posts are very choppy because I have trouble connecting my thoughts. My seizures (episodes) aren't the "fall to the ground, shaking all over" seizures. I will merely just stare at a certain area and won't remember what happened during that time. Sometimes my arms or legs move, but most of the time my seizures are gentle. Sometimes I have long ones and sometimes will come in and out of them, able to comprehend what is happening but won't be able to stop it. I have auras before them, most of the time it is a headache but I will sometimes have a feeling that something that is going to happen (I get the "butterfly effect" when I have this aura). I also have arthritis and have had it since I was little. It is from the Lupus. I get migrains a lot because of the chiari malformation. If you have any questions about any of what I wrote, just ask. Have ever noticed the only seizures ever shown on tv are the fall out of your chair and shake ones the I get don't go that way I just feel dizzy and my hand tremble a bit Yeah, I hate it when they do that. I feel like calling and saying "do research please!"  |
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Post by brokenquill92 on Jul 8, 2012 18:11:45 GMT -5
I feel for you my fellow. Epil-pal.. Mine aren't the full on seizures either. I was January that I went for a ECG scan and May that I got the results. I was suffering from the same as you. I would start into space and my hands would shake. We'd told the Dr for over 2 years that it was happening but he wouldn't do anything about it. That's why I gave him the nickname Dr DoFuckAll... yeah, they just started to get worse about a year ago (a very stressful year). I started to notice that sometimes I would feel weird and then I would remember certain things. I also started to remember back when I was little and I would "wake up" to my mom yelling at me for daydreaming in school (I was homeschooled k-12 and I was taught by my parents, not a tutor). I would tell her that I wasn't daydreaming and that I couldn't hear her when she called me 5 times in a row and that I didn't know what she said, I couldn't remember. It all came together when I started having these seizures and we think that I have been having them for years. They did a EEG when I was little, but they couldn't find anything and this time they did an VEEG for 5 days and caught a few, but nothing happened with my brain with those so they put it as psychogenic. the worst thing about the whole "being diagnosed" was the spinal tap. My first neurologist tried to do it in the office, and I know that it is common and that is it a simple procedure, BUT....when he started, he couldn't figure out whether to have me lay down or sit. He also had trouble finding where to insert the needle. When he finally started, it really hurt. He pulled out and tried again, this time a sharp pain went from my right shoulder all the way to my foot! I told him to stop and he did (thankfully). I didn't go back to him again (as he also gave me a mixture of meds that gave me a weird side effect where I couldn't stop moving on one side). I changed doctors and this one sent me to floroscopy. With Floroscopy the whole spinal tap was a breeze. didn't hurt and didn't have any problems. They have to knock me out for my spinal taps because they're always painful for me |
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Post by dracosfairmaiden on Jul 8, 2012 18:19:28 GMT -5
I had a lazy eye. I had it corrected when I was a little girl and now I have severe nearsightedness. I also have slight depth perception problems. I nearly failed my vision test the first time. I'm not legally blind, and my vision is corrected with glasses.
When I was 17, (I'm 20 now) I was diagnosed with Graves Disease a thyroid condition. It causes my thyroid to overreact causing me to lose a lot of weight really quickly. It also caused anxiety and nervousness throughout high school.
I've taken medication for it for 3 years now, but there are more permanent treatments. But those are more desperate treatments so hopefully it won't come to that.
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Post by brokenquill92 on Jul 8, 2012 18:19:30 GMT -5
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Silvertongue
Headmaster/Headmistress
I've got Slytherin Pride
Posts: 1,595
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Post by Silvertongue on Jul 8, 2012 18:32:42 GMT -5
Ignore this post. I'm just checking something out.
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Post by Dimcairien on Jul 8, 2012 18:39:26 GMT -5
See ya! Btw I had a friend who had a curvature of the spine, too. She had an operation to straighten it out and then had to wear a brace on her back that looked like a tortoise shell. I guess she was lucky she was so popular because I can imagine someone less so would probably be bullied a whole lot for that. I'm thankful I didn't have to wear a brace, but it was still about a month of not much moving except to go to the bathroom and walk around a bit to avoid bedsores. |
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Post by mountaingirl777 on Jul 8, 2012 20:57:21 GMT -5
I believe I have a curve of the spin, but I was never tested. Er....I don't think I was, if I was tested I don't remember and if I was then it wasn't bad enough to do anything.
I always feel crooked and I notice that one of my hips in higher than the other. I believe my shoulder blades are the same, but I can't really see them. The crooked feeling is weird, it feels like I have a hole on the right side and it feel like my ribs are trying to connect with my hip at some points, especially when I sit down. It is really hard to sit straight, I mostly sit hunched over.
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sherza
Head Boy/Girl
Posts: 705
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Post by sherza on Jul 8, 2012 21:31:43 GMT -5
I'm legally blind without my glasses, and only have 20/80 vision with them.
I'm also almost completely deaf in one ear, and have a hearing condition that makes certain tones/sounds physically painful (for instance, cars with maxed out bass systems, blasting music as loud as the speakers will go. The bass thumping *hurts*, and I can feel/hear them coming from miles away. *cringe*)
I am also bipolar, severe enough that I'm classified as disabled. Working for a living is NOT possible for me. I stress out VERY easily, and things get messy when I stress out. At best, I throw a verbal tantrum and stalk off. Which, as you can imagine, wouldn't go over well with a boss. *points at erstwhile recalcitrant muse* The depressive swings also suck big fat hairy balls. I can go weeks where all I want to do is sleep.
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Post by kumainpink on Jul 8, 2012 22:29:44 GMT -5
Damn. And here I thought having Seasonal Affective Disorder was bad.
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Post by brokenquill92 on Jul 8, 2012 22:33:03 GMT -5
I just wish my mother didn't have Molly Weasley syndrome and would let me live my own life I mean so going for a joyride when I can't see past my nose was a bad idea but I'm not that reckless
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