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Post by kumainpink on Jul 8, 2012 22:35:32 GMT -5
=/ Jeeze.
And lol Molly Weasley syndrome! I love that term!
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Post by Kitty279 on Jul 9, 2012 1:29:08 GMT -5
Oh wow, I hadn't expected to find so many with disabilities or at least health problems here! Wingy, that thread was a great idea!
As I said before in another thread, I lost my hearing when I was barely 6. All I can hear are extremely high or deep noises (the tone, but not what exactly it is). Speech is completely lost to me, and hearing aids useless. But I got through normal school all right and it doesn't hinder me too much, thankfully.
Sherza, I know what you mean about the basses. I hate them, too - everything around me vibrates and I get a headache when it goes on too long because I am not used to that infernal noise and that stomping rhythm grates on my nerves. The main reason why I hate these fairs with fun rides - they usually have the music full blast all the time. You don't understand your own word there.
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sherza
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Post by sherza on Jul 9, 2012 2:08:05 GMT -5
Sherza, I know what you mean about the basses. I hate them, too - everything around me vibrates and I get a headache when it goes on too long because I am not used to that infernal noise and that stomping rhythm grates on my nerves. For me, it's something to do with the bones just behind the ear that carry such vibrations that's gone wrong. There's a technical/medical term for it, but I've long since forgotten it because I only heard it like once or twice. Anyway, those deep tones just ... yeah. Vibrate wrong. And set off a massive headache if it goes on for more than a few seconds. Under about thirty seconds, I 'only' have to deal with plain pain. *snerk* |
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Post by Kitty279 on Jul 9, 2012 2:29:49 GMT -5
Ouch. Much worse than for me **huggles**
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Silvertongue
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Post by Silvertongue on Jul 9, 2012 6:16:53 GMT -5
Does that mean you guys can't really handle a party atmosphere where they're playing music quite loud?
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Post by Miss Wings on Jul 9, 2012 6:38:37 GMT -5
I have Psychogenic Non-Epileptic Seizures (caused by stress and other stuff), Chiari Malformation type 1, and Brain Fog caused by Lupus when I was younger (I'm in remission since age 14). Brain Fog consists of cognitive disfunction, difficulty finding words, confusion, impaired recall, depression and anxiety which I have most of them and which is why some of my posts are very choppy because I have trouble connecting my thoughts. thank you for finally giving me a name. i meant what i said about my Dr. to me it seems as though they saved me life and then had let me go. i had 1 major siezure a month after i was released from hospital and that was when i was diagnosed with epilepsy. i got put on phenytoin and it was 2 years later that i finally got diagnosed with the same as you. |
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Post by Kitty279 on Jul 9, 2012 7:08:26 GMT -5
Does that mean you guys can't really handle a party atmosphere where they're playing music quite loud? Luckily, parties with family and friends are a bit quieter (the family is more into classic anyway), and I avoid any places with loud music like the plague. Besides getting a headache, it's very difficult to make myself understand by others when I can't tell how loud I have to speak - usually it is not loud enough. |
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Silvertongue
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Post by Silvertongue on Jul 9, 2012 7:12:04 GMT -5
That must get so annoying for you. I don't know how I'd deal with being in that kind of situation. Is it easier, do you think, when it happens to you while you're younger?
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Post by Miss Wings on Jul 9, 2012 7:12:06 GMT -5
You wouldn't like my family parties then Kitty. Always have to outbeat each other with music. I think there's only my Mum and I that doon't  |
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Silvertongue
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Post by Silvertongue on Jul 9, 2012 7:14:13 GMT -5
I used to go to parties where we couldn't hear each other over the music even when we were standing right next to each other, but they're tamer now and it's only on lowly in the background so we can talk.
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Post by Kitty279 on Jul 9, 2012 7:29:34 GMT -5
That must get so annoying for you. I don't know how I'd deal with being in that kind of situation. Is it easier, do you think, when it happens to you while you're younger? Hard to say, but I suppose you can't really miss something you don't know, or at least not that much. When you have enjoyed it for years and then can't do it any more, it's probably harder. Besides, I was horribly unmusical even before I lost my hearing  But then, I'm more the type to say it's no use to cry over spilled milk, and self-pity doesn't get me anywhere, so I don't think too much about that sort of thing. There are certainly others who don't take it that easy. You wouldn't like my family parties then Kitty. Always have to outbeat each other with music. I think there's only my Mum and I that doon't *winces* No, not my type of fun  |
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Post by Miss Wings on Jul 9, 2012 7:31:38 GMT -5
I used to listen to music quite loudly on my headphones but then **bang** I landed myself in hospital |
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Silvertongue
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Post by Silvertongue on Jul 9, 2012 7:31:42 GMT -5
I think I'd be a self-pitier, if I'm honest. I'd know other people would have it far worse than I did but I'd still feel sorry for myself. I'm inherently selfish like that. It's a trait I got from my Dad for sure.
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Post by brokenquill92 on Jul 9, 2012 7:49:25 GMT -5
I think I'd be a self-pitier, if I'm honest. I'd know other people would have it far worse than I did but I'd still feel sorry for myself. I'm inherently selfish like that. It's a trait I got from my Dad for sure. I don't self pity much but when I get frustrated with myself I tend to whine I know it's not very grown up but I'm used to having my own way at least at home and when I get to a point where my own physical issues get in the way I either push to do it anyway or have a fit though nowhere as bad as a "Dudley tantrum" |
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Post by 19811945 on Jul 9, 2012 7:56:03 GMT -5
Over the UK, when I was younger, I was meant to have the three injections for MMR (Measles, Mumps and Rubella) - each one separately. I couldn't have all three because I was allergic to one of the ingrediants in the injections. I did manage to have two out of three of them, but it was enough to put me in hospital with seizures/convultions.
I did end up with some learning disabilities - reading, writing and when younger, speech. I did get help with school.
In 2010, I went to a specialist school (paid for by my work at the time), to get checked out for dyslexia. I have a mild form dyslexia with dyspraxia. I literally spent, at the time, 25 or so years, compensating for having dyslexia and dyspraxia without any specialist help.
Even when I've been writing this post, I double checked for spelling and words, because I end up missing letters out of words. Trust me I did miss letters.
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Post by Kitty279 on Jul 9, 2012 10:16:06 GMT -5
I think I'd be a self-pitier, if I'm honest. I'd know other people would have it far worse than I did but I'd still feel sorry for myself. I'm inherently selfish like that. It's a trait I got from my Dad for sure. See, and I've inherited practically the opposite, or maybe it's the mindset. My grandfather fell shortly before the end of WWII, my grandmum had to raise three children alone without much of a job. And my own father died when I was still in school, leaving my mum again alone with two children and no job. She found something, but we didn't have much money back then. So we all grew up learning that self-pity doesn't get us anywhere, we had to fight and do something to survive and achieve something. And my Mum told me early on that it is not fair, but I'll still have to do more to achieve the same as others. Just feeling sorry with myself would only have me ended up in a special school - and god knows if I'd have learned much there. Not as much as I did, in any case. |
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Post by 19811945 on Jul 9, 2012 12:12:38 GMT -5
I think I'd be a self-pitier, if I'm honest. I'd know other people would have it far worse than I did but I'd still feel sorry for myself. I'm inherently selfish like that. It's a trait I got from my Dad for sure. See, and I've inherited practically the opposite, or maybe it's the mindset. My grandfather fell shortly before the end of WWII, my grandmum had to raise three children alone without much of a job. And my own father died when I was still in school, leaving my mum again alone with two children and no job. She found something, but we didn't have much money back then. So we all grew up learning that self-pity doesn't get us anywhere, we had to fight and do something to survive and achieve something. And my Mum told me early on that it is not fair, but I'll still have to do more to achieve the same as others. Just feeling sorry with myself would only have me ended up in a special school - and god knows if I'd have learned much there. Not as much as I did, in any case. I'm glad that I was raised by both my parents. No brothers or sisters though. Plenty of cousins. To be honest, too many to even remember their names. My mum died in 2008 from Congestive Cardiac Failure (Heart Failure) and Chronic Obstructive Pulmonary Disease (COPD), so in short both her heart and lungs gave out. The nurses in Intensive Care were surprised on how long she lasted (roughly 24 hours from when she was first admitted in the Casualty (Emergency) Department. The nurses thought she would die during the night, not at roughly 9.30am in the morning. |
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Post by Kitty279 on Jul 9, 2012 12:17:25 GMT -5
I'm sorry about your mum. It's always hard to lose a beloved parent  |
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Post by 19811945 on Jul 9, 2012 12:22:35 GMT -5
We were more like sisters than mother and daughter. We fought like dogs, but she was always there for me. |
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Post by Kitty279 on Jul 9, 2012 12:23:44 GMT -5
Being so close makes the loss harder, I think, but I am glad you had the time you had and got along so well. (Ok, when you didn't fight, that is ) |
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Post by physicssquid on Jul 9, 2012 12:24:21 GMT -5
It truly is. My mum died of stomach cancer four years ago, and now my grandmother is losing her mind. |
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Post by Semper Caritas on Jul 9, 2012 12:31:51 GMT -5
I've never really thought about all the other people on the internet who you talk to casually that might have disabilities. And I've never seen a thread like this before. Interesting. (: I like it.
I was born with Melorheostosis in my right foot, which is a rare bone disease (1 in 1 million get it). It is supposed to cause severe pain and get so bad that the limb inflicted with the bone disease will have to be amputated. However, I suppose I've been luckily so far, as I haven't had much pain from it in my 17 years. Also, my doctor who discovered the Melorheostosis years later said he believed I have a milder case of it than others.
I was also born with a hemangioma in the same foot. It is a benign tumor and there is no known cause for it, but quite a few children are born with it. It will usually go away on its own once the child enters the puberty stage. Mine didn't because it is so deep inside my foot, which also makes it impossible to cut it out. It causes some pain and I have a little difficulty walking with my foot flat on the ground due to its position in my foot.
In the same foot, around the ankle area, I have venous malformation. I was also born with this, but didn't know about it until 2 years ago. So my veins in my ankle area are larger than normal. I was told by a doctor that all they could do for this is to inject alcohol into the veins, which I refused because of the risk that the alcohol would travel through my bloodstream, to my heart, and kill me.
I also have lymphedema in my lower right leg and foot, due to an accident I was in with my older brother when I was eight. Again, luckily, my lymphedema developed slowly and even though I've had it 9 years now, my leg does not swell up that large. However, due to the large scar that almost wraps all the way around my lower leg and the swelling, I'm fearful of wearing anything other than long jeans around people other than family.
When I was 13, I was diagnosed with major depression and post-traumatic stress disorder. I took medicine for it for a week, maybe and then just tried to cope as best as I could. I do sometimes go into a depressive mood, but I've been taking anxiety (panic attacks sort of run in the family;my grandma, her niece, and now me) medication for the past two months and it has helped tons.
I understand about the pity and all, as I sometimes go into my "self-pity" modes. Why me? You know. Sometimes I get jealous of my family members for not having anything wrong with. (It makes me feel like the mutant in the family, you know.) But then I regret being jealous of that, because I don't want anything to be wrong with them at all. As a child, I never felt sorry for myself, because I didn't think anything was wrong with me. But getting older, you become more aware of things.
I've also experienced some bullying due to my "disabilities". When I was 10 and still wore shorts (I didn't care that people saw my scar then), my friends and I were playing on the swing set one sunny afternoon at recess. There were two boys in the swings just next to ours and one of the them looked over at me and said, "Eww! Look at your leg!" That was awful. And even though my friends defended me (one of them said, "Eww! Look at your face!" to the boy) and tried to tell me not to worry about it afterwords, it didn't help. That's when I stopped wearing shorts, dresses, etc.
I had a gym teacher in my second semester of high school who just couldn't understand that I can not run. That I can't do a lot of things everyone else does and there is just nothing I can do about it. A doctor had to get involved and my granny talked to the principal, who wanted to know if my condition was "just temporary" right after my granny told her I would have these disabilities for as long as I live. It was a very disturbing experience and my parents ended up homeschooling me the next year (and onward; I've graduated a year early now).
I know it may be personal, but I'm curious as to whether others here who have disabilities are on disability? Or in someway listed as disabled? That's something I was always unsure about. I've never wanted to be labeled as "disabled", because I feel like it would make me feel useless. (This ended up very long. =\)
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Post by Kitty279 on Jul 9, 2012 12:32:39 GMT -5
Oh, that's so sad! Having to watch how they slowly decline is always the worst, IMO. My mum is struggling with Chronic Lympathic Leukemia and Lipedema, and to sit there and have to watch helplessly is very difficult. So I know how you feel |
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Post by Dimcairien on Jul 9, 2012 12:37:05 GMT -5
Loosing any close relative is horrible, no matter the age, but I think the period in which they're dying is probably worse.
My maternal grandfather died from cancer five years ago (thankfully it was really fast), my maternal grandmother is nearly 84 and isn't in very good health, and my paternal grandmother just got diagnosed with Parkinson's Disease. I'm thankful that my paternal grandfather is still in pretty good health for being 79. He still enjoys riding a bike, so that shows he's still physically fit.
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Post by physicssquid on Jul 9, 2012 12:39:32 GMT -5
Oh, that's so sad! Having to watch how they slowly decline is always the worst, IMO. My mum is struggling with Chronic Lympathic Leukemia and Lipedema, and to sit there and have to watch helplessly is very difficult. So I know how you feel The worst thing is, my grandmother was fine until she went to hospital to have a cataract removed last November. |
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Post by dracosfairmaiden on Jul 9, 2012 12:43:33 GMT -5
I'm lucky I still have my parents.They don't have any major diseases to speak off. It sucks that I have thyroid disease but my sister is perfectly healthy. It doesn't make sense, but I don't wish it on her.
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Post by Miss Wings on Jul 9, 2012 12:47:30 GMT -5
You have hyperthyroidism aswell draco?
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Post by 19811945 on Jul 9, 2012 12:54:42 GMT -5
My mum always had problems with her chest for her last 20/25 years of her life (she was 57 when she died). She developed plurasy (might have spelled that wrong) in the early to mid 80's. She did a stupid thing and not got it sorted out sooner, so she ended up with asthma. She did end up with chest infections, and because the doctors knew her, they allowed antibiotics to be prescribed to her without actually seeing the doctor. Unfortunately for her, she was allergic to penacillin, so only certain antibiotics could be prescribed to her. Once in a while, she did have to go and see the doctor for her chest. To the doctors, she was one of the better patients, as she could laugh and joke with them.
For someone who is 4ft 11in, she knew how to have a good time. One of her brothers wanted her to be nice and quiet, while a sister wanted her to be who she is. Can't win with brothers and sisters. One traint that is common throughout them is their temper (in which case I've inherited but with the red (strawberry blonde) hair).
At the moment I am living with my dad, he's not in good health. He's on about 15/20 separate tablets. One of the main things that he is a diabetic type II, osteo-arthiritis in the spine/neck area and he himself have problems with his chest. As long as he keeps moving, he doesn't seize up as some people who has got arthritis.
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Post by dracosfairmaiden on Jul 9, 2012 12:54:41 GMT -5
Yes, I do. I've had it since I was 17. I'm 20 now. It sucks. |
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Silvertongue
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Post by Silvertongue on Jul 9, 2012 12:59:20 GMT -5
Luckily, my parents are also very healthy people at the moment, though I worry about my dad because he smokes a lot, and about my mother because she's gone through bouts of depression.
I feel really sorry for my nan because she had 6 siblings but 4 of them died in the last 18 months and couple of in-laws. She's had so many funerals to go to recently and it's really getting to her. Only her eldest sister is left and she's having health issues and she's also having to go to a hospice every day to look after one of her in-laws when she doesn't even like the guy in the first place.
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